Since some ladies have expressed interest in what Autism is like for me, or how I knew to seek a diagnosis for it, I thought I’d share with everyone.
The tricky part of the Autism spectrum are the perimeters used to define it. In order for it to be a “Disorder” or “Syndrome” the psychologists/psychiatrists/neurologists have to come up with the deficits that impair human beings from daily living which also has to be defined. The same holds true for many other psychological diagnoses. What I have found with Autsim, both living with it and learning from others, is that both definitions are suddenly made fluid.
Autism is a neuro-biological developmental disorder. That is what the professionals say. In Classic Autism, the visible impairments include lack of verbal development, repetitive behaviors or self-injurious actions, perceived lack of empathy, little or no eye contact, and other biological delays. This is what most people think of, if they have any idea of what Autism is like. I would like to emphasize that these symptoms are what others perceive and are not ends in and of themselves. The reasons for these behaviors are hypersensitivity to stimuli and a “mis-wiring” in how to communicate with other human beings.
Let me expand on that last point. Most Autistics have what is called “Face-blindness” or the inability to recognize individuals or emotions through facial expressions. I’ve read that our brains perceive faces like objects. We have to consciously learn what a happy face is like or what anger is like. Then again, facial expressions are highly influenced through culture and societal expectations, so it can be hard to make a mental encyclopedia of all the possible variations. You can see how this can be exhausting!
Apserger’s Syndrome is also along the Autistic specturm, though with some differentiation. The psychologists rate a child with Asperger’s normally through their developmental level (how impaired they are) and their intelligence (how high it is). There are several other characteristics: repetitive behaviors (stimming), very focused interests, clumsiness, and the social impairments I named above. I’m breezing through all this so you can get a handle on what I will describe in my life.
When I said that the Autistic spectrum and what is normal or “Neurotypical” is fluid, I mean that what it boils down to (for me) is a difference in perceptions and expectations. [If you are an Autistic reading this...please give me some slack!] Since each Autistic has a unique set of symptoms, their perceptions are also unique. They often complain of being a “zoo exhibit” by listing all their sensitivities or behaviors to others because they are so different. Yet, Neurotypical folks have their own sets of oddities that Autistics find weird. Autistics and Neurotypicals are human, just differing in the ways they perceive and interact with the world. Each needs to give room and accommodations to the other.
Okay, off my soap box and onto the subject of me.
Here is how Autism added up for me:
- Inability to make and keep live friends: This is the biggest “distress” for me. I would like to make friends, especially lady friends in person (like dear long-suffering Cathy) but find it difficult to manage all the social “rules.” Also, unless I share many strong interests with the person, its hard for me to maintain contact with them. What do I talk about? How do I properly open up emotionally to them? Do they think I weird? Do I make them feel uncomfortable? How can I tell they like me? And on and on….Typical female events are also tedious for me, like Women’s Ministry. Sigh and Shudder. Bridal and Baby showers are ok, for a while. Did I mention I don’t like make-up and hair and other female stuff?
- Fear and Anxiety as a Child: Most everything new freaked me out. Thunderstorms were a biggie.
- Strong interests: Blogging about modest dress and headcoverings, pretty narrow interest field, huh?
I have many others that I’ve maintained or let go of over the years. Thats enough for many other blog posts.
- Clumsiness: This is something that my parents inadvertently helped me with as a child through ballet classes. The problem is, I can be graceful in ballet, but the rest of normal life, its a free-for-all on my poor body!
- Jokes: Especially the kind where a person is appearing to be serious but are saying something funny. I cannot interpret it as funny. They have to apologize when I take it seriously. Puns are borderline. I have to think them out. I love irony or sarcasm, in print or on the movie screen. This gives me time to think it over. I used to think I was just gullible. It has been persistent, no matter how many times I try to overcome it!
- Staring off into space: I need time to think and stare, sometimes out the window or at the ceiling.
- Low-Energy: Real Life is exhausting. Naps Rule!
- Auditory Difficulties: My hearing is fine, but the perception of what people are saying is difficult. Sometimes I can be looking straight at a person and focused completely on them, but then the sound cuts out for a few words in the middle of sentences. Restaurants are usually too busy and loud for me to have any meaningful conversation. Appleby’s is a nightmare! My husband is convinced I have near perfect pitch. I help him tune his guitar.
- Attention Issues: This is because details fascinate me. I feel like a mouse in a maze for most of my daily life. To get the cheese, I memorize details of everything. Jeff calls this “Fly Paper Brain.” It all sticks! Of course, for Normals, they screen out most of this stuff. Hence why I get so tired…
- There are many other small things that add up, too. Light sleeper at night. Insomnia as a child. Likes technology.
Well, if you made it this far, you deserve a gold star! Feel free to ask questions.